Questionnaire

Dear Sir/Madam,

If you wish to register for the free counseling service provided by the professional team engaged and funded by the Foundation for the Fight Against ALS, please complete the electronic questionnaire.

After submitting the questionnaire, you will receive a response with a phone number that you can use to schedule your appointment at the counseling center. During the session, you will have the opportunity to ask questions and receive all the information that can help you cope with ALS.

To ensure we can provide you with timely feedback and contact details for scheduling your appointment, please enter the following information in the questionnaire:

Have you been diagnosed with amyotrophic lateral sclerosis (ALS), or motor neuron disease (MND)? *
Do you have difficulties in obtaining the necessary professional medical care? *

About

Mission

Our mission is to enable people living with amyotrophic lateral sclerosis (ALS) to lead the highest possible quality of life, despite the challenges the disease brings. We believe that everyone has the right to dignity, security, and support. That is why we provide assistance not only to patients, but also to their families—through reliable information, counseling, and practical support in exercising their rights, as well as by strengthening a community built on understanding and care.

Vision

Our vision is a world in which people living with ALS live longer, healthier lives filled with greater hope. We work with the belief that science will ultimately lead to a cure that makes ALS a treatable disease. Until then, we remain committed to building a system of support, understanding, and solidarity.

Strategy

Our path toward achieving the Foundation’s mission and vision is based on comprehensive, long-term support. We focus on:

  • Information, education and practical assistance – providing clear and accessible information on patients’ rights, the ways these rights can be exercised, and offering concrete support in the everyday challenges faced by people living with ALS and their families.
  • Financial support – supporting research aimed at developing more effective therapies and, ultimately, a cure for ALS.

Through this approach, the Fight Against ALS Foundation stands alongside people living with ALS and their families, with the goal of making each day more meaningful, higher in quality, and filled with greater hope.

Foundation Manager
Prof. Dr. Sci. Med. Zorica Stević

Full Professor at the Faculty of Medicine, University of Belgrade, Department of Neurology, and specialist in neuropsychiatry, retired. From 1985 to 2024, she was employed at the Neurology Clinic of the Clinical Center of Serbia. Since then, she has continued her professional work with patients suffering from neuromuscular diseases, primarily ALS and other motor neuron diseases, as well as polyneuropathies and spinal cord disorders. She is a leading expert in Serbia in the diagnosis, support, and treatment of people living with ALS.

She is the author of more than 360 scientific publications, including numerous papers published in leading international journals. She is the editor of a book on contemporary concepts in the diagnosis and treatment of neuropathies and a co-author of multiple book chapters covering various aspects of innovation, palliative care, and motor neuron diseases. She has also participated as a collaborator in numerous national and international research projects.

In 1997, she founded the Serbian Association for Motor Neuron Diseases. Since its establishment, she has organized professional workshops providing support and assistance to ALS patients and their families. On multiple occasions, she successfully secured international donations for the Association. She also served as one of the directors of the International Alliance of ALS and Motor Neuron Disease Associations (2005–2008). She actively collaborates with international organizations involved in scientific research, patient support, and various forms of assistance for people living with ALS.

She is also the founder of the Serbian Peripheral Nerve Society (2012), established with the aim of bringing together neurologists in Serbia who specialize in this group of diseases. Over thirteen years of the Society’s work, outstanding professional connections were established between Serbian neurologists and researchers worldwide, resulting in successful projects and the organization of several international symposia in Serbia.

She has organized numerous professional conferences dedicated to ALS and other neuromuscular diseases and is a frequent lecturer at symposia in Serbia and abroad. She is also a co-author of the first documentary film about people living with ALS, Invisible Heroes of Serbia (2021).

Prof. dr sc. med. Zorica Stević

Partners

The Foundation Fight Against ALS actively supports the work of national and international organizations and research centers dedicated to the study of ALS, with the goal of finding a cure and developing more advanced and effective therapies. Our support is focused on strengthening research efforts and accelerating progress in the treatment of the disease.

Organizations we support:

NORBS – National Organization for Rare Diseases of Serbia

The National Organization for Rare Diseases of Serbia (NORBS) was founded in 2010 as an umbrella organization bringing together associations dedicated to people living with rare diseases. NORBS is a voluntary, humanitarian, non-partisan, non-governmental, and non-profit organization led by people with rare diseases and members of their families. Its mission is to improve the position of individuals with rare diseases and disabilities resulting from rare diseases within the Republic of Serbia.

NORBS’ activities focus on ensuring that people living with rare diseases are recognized within healthcare and social protection systems, as well as across all areas of social life; that they have access to the most advanced diagnostic methods, treatment, and care; that their representatives participate as equal partners in all relevant decision-making bodies addressing rare diseases; and that legal regulations are continuously improved and consistently implemented.

For more information, please visit: https://norbs.rs/